COVID-19 Research Guide: Post-acute Covid Syndrome (PACS or Long COVID)

National Institute for Health and Care Excellence, UK, updated January 2024

Mayo Clinic, patient education

American Academy of Physical Medicine and Rehabilitation

BMJ Practice Pointer, September 22, 2022

These groups are meant to be a safe space where participants suffering from Long COVID can get evidence-based integrative medicine advice/information.

DynaMed

NCBI, March 2024

CDC

WHO

Services and support for workers with Long COVID.

HHS.gov Civil Rights

The HHS Health+ ("Health plus") program uses human-centered design to co-create patient-centered solutions with people—not for people—impacted by the most pressing healthcare challenges. The goal is to improve U.S. government programs to better support and serve those affected.

Government services and support, long Covid as a disability, living with long Covid

National Academies of Sciences, Engineering, and Medicine, 2024. A consensus definition for Long COVID for policymakers, researchers, public health professionals, clinicians, support services, and patients.

Fact sheets and resources for getting help in Virginia.

August 2022

"RECOVER...seeks to identify how people recuperate from COVID-19 and who is at risk for developing post-acute sequelae of SARS-CoV-2 (PASC)." Studies, protocols, data and clinical trials.

ClinicalTrials.gov

National Center for Health Statistics

Konkle SL, Magleby R, Bonacci RA, Segaloff HE, Dimitrov LV, Mahale P, Katic B, Nji M, Cadwell B, Ko JY, Bushman D, Rushmore J, Cope J, Saydah S. Post-COVID Condition Risk Factors and Symptom Clusters and Associations with Return to Pre-COVID Health-Results from a 2021 Multi-State Survey. Clin Infect Dis. 2024 Dec 20:ciae632. doi: 10.1093/cid/ciae632. Epub ahead of print.

Avinir, A., Kupershmidt, A., Amsterdam, D. et al. Personality and neuropsychiatric symptoms in individuals diagnosed with long COVID. BMC Infect Dis 24, 1449 (2024). https://doi.org/10.1186/s12879-024-10308-0

Constantinidou F, Sander A, Bergquist T, Zimmerman AS, Kingsley K. Strategies to Manage the Thinking and Emotional Difficulties of Long COVID: A Guide for Patients and Families. Arch Phys Med Rehabil. 2024 Sep;105(9):1809-1812. doi: 10.1016/j.apmr.2023.09.014. Epub 2023 Oct 31. PMID: 37906246.

Ford ND, Agedew A, Dalton AF, Singleton J, Perrine CG, Saydah S. Notes from the Field: Long COVID Prevalence Among Adults — United States, 2022. MMWR Morb Mortal Wkly Rep 2024;73:135–136. DOI: http://dx.doi.org/10.15585/mmwr.mm7306a4.

Yong SJ, Halim A, Halim M, et al. Experimental drugs in randomized controlled trials for long-COVID: what's in the pipeline? A systematic and critical review. Expert Opin Investig Drugs. 2023 Aug 4:1-13. doi: 10.1080/13543784.2023.2242773. PMID: 37534972.

Bramante CT, Buse JB, Liebovitz DM, et al. Outpatient treatment of COVID-19 and incidence of post-COVID-19 condition over 10 months (COVID-OUT): a multicentre, randomised, quadruple-blind, parallel-group, phase 3 trial. Lancet Infect Dis. 2023 Jun 8:S1473-3099(23)00299-2. doi: 10.1016/S1473-3099(23)00299-2.

Thaweethai T, Jolley SE, Karlson EW, et al. Development of a Definition of Postacute Sequelae of SARS-CoV-2 Infection. JAMA. Published online May 25, 2023. doi:10.1001/jama.2023.8823